nirvaan

KOCHI: The father feels that the unknown person who donated Rs 11 crore for the treatment of Nirvaan, a one-and-a-half-year-old boy suffering from a rare genetic disease, is God's messenger. The baby has Spinal muscular atrophy (SMA). 'I don't know what to say, God has come in the form of an unknown...' Saying this, Sarang's father choked on tears.

Nirvaan is the only child of Aditi Nair from Angamaly Attani and Sarang from Palakkad Kootnad. All three are now at Aashirwad House in Angamali Athani. When the American medicine called Zolgensma arrives, they will go to the hospital in Mumbai. There are several tests to be done before the medicine is administered. Once the drug arrives, a one-time gene transfer will take place.

Sarang was a marine engineer in Adelaide, Australia. He was living happily with his wife Aditi, a French IT company employee, and Nirvaan. They returned to India on January 19th after their son's illness was confirmed. Further treatment at Mumbai Hinduja Hospital. But the treatment cost of 17.5 crores was unimaginable. The examination was done when the son hesitated to sit and stand even at the age of one year. Hinduja Hospital confirmed that the baby has SMA type 2.


How did 1.4 million dollars come?

1.4 million dollars (about 11.6 crore Indian rupees) was deposited into the account on Monday through the crowdfunding app, which was started to collect medical aid. An unknown person had been looking for Niravan's medical information and records since the 13th of this month. Crowdfunding platform Milap reported that he indicated that he only wanted Nirvana to survive anyway. Now there are more than 16 crore rupees in the medical aid fund. 15 crores through crowdfunding agency Milap and 1.4 crores through Guru Agency.


'I want to know about the person who paid so much money but they have been told not to disclose the name and there is no other way' - Saarang, Nirvaan's father