SMA treatment: Nirvaan to leave for Mumbai next week

KOCHI: Nirvaan Sarang, a one-and-a-half-year-old boy suffering from Spinal Muscular Atrophy (SMA), a rare genetic disease, will go to Mumbai with his parents next week for further treatment. Nirvaan's father Sarang said that out of the Rs 17.5 crore rupees needed for the treatment, more than Rs 17 crore rupees have been received and he hopes that Zolgensma can be brought from America as soon as possible. The gene therapy is expected to take place by mid-March.

Before the medicine can be delivered, tests need to be completed at Mumbai Hinduja Hospital. The medicine can be nought only if the result is sent. A one-time gene transfer will then take place.

Sarang said that since Rs 17 crores have been received, he will not ask for help anymore and the remaining amount will be collected from relatives and friends.

Sarang said that everyone should include them in ptheir rayers and thanked everyone who has supported so far.

An unknown person had donated 11 crore rupees for Nirvan's treatment the other day.

Nirvaan is the only child of Adithi Nair, a native of Angamaly's Athani, and Sarang, a native of Palakkad Koottanad. All three are now at Aditi's Asheervad home in Angamali's Athani.